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Patients’ experience of receiving GSF-led primary palliative care
  1. Sarah Kelt,
  2. Daniel Munday and
  3. Jeremy Dale, Professor of Primary Care
  1. Sarah Kelt is an Honorary Research Fellow at Warwick Medical School, Coventry, and Specialist Registrar in Palliative Medicine in the West Midlands, Daniel Munday is Consultant/ Honorary Senior Clinical Lecturer in Palliative Medicine, Coventry Primary Care Trust and Warwick Medical School, Jeremy Dale is Professor of Primary Care, Warwick Medical School. Email: sarahkelt{at}doctors.org.uk

Abstract

Background: Most end-of-life care is provided in the community where primary healthcare teams take a leading role in its co-ordination and delivery. The Gold Standards Framework (GSF) aims to facilitate high-quality, community palliative care. Little research has explored patient experience of receiving care from practices involved in the GSF. Aims: To explore the views of terminally ill patients and their carers on the care received from practices participating in the GSF. Methods: Semistructured interviews were undertaken with patients and carers recruited through general practice. Interviews were transcribed and analysed using thematic content analysis. Results: This small group of patients and carers reported generally positive experiences. Care that was co-ordinated and accessible was valued, as was feeling well supported. Difficulties arose from either a breakdown in the organisation of care or problems in accessing it. Conclusion: For this selected group, the experience of primary palliative care was generally good. When patients felt that their needs were met, especially when healthcare professionals provided a personalised service, they reported this as a positive experience. Problems, when they did occur, caused significant anxiety. Some of the patients’ priorities reflected the aims of the GSF. Further research in this area is needed to assess the impact of the GSF on a broader range of terminally ill patients. Conflicts of interest: none

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