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9 Does Using Patient Mapping Have an Impact on Improving Care for People with Learning Disabilities Who Have End of Life Care Needs?
  1. Anne Willis
  1. Marie Curie Hospice, Edinburgh

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Background: Using an improvement process tool to map the patient’s journey is a validated method for ascertaining how systems of care delivery impact on patients (www.institute.nhs.uk). As part of the work programme being undertaken on behalf of the NHS Lothian Managed Clinical Network for Palliative Care, a multi-agency working group has met regularly to consider the needs of patients who have learning disabilities (LDs). Evidence suggests that access to services for patients with LDs is difficult and that factors exist that inhibit the provision of holistic care (Read, 2005; Tuffrey-Wijne et al, 2007). Aim: To use a patient mapping exercise (PME) to identify the barriers to high-quality end-of-life care (EoLC) for patients with LDs in NHS Lothian. Objectives: To use PME as a means to capture patient and care provider experience; to identify effective interventions for improving care. Method: A mapping workshop was planned by the established multiprofessional working group. The patients identified had both died in the past 8 weeks and were known to the hospice and a social services’ community group home. Using flow charts, experiential journeys were mapped accurately for both patients. Participants were encouraged to evaluate the impact of the workshop on their practice. Results: Barriers to providing quality EoLC and replicable good practice examples were identified. Additionally, PME facilitated increased understanding of the differing roles, responsibilities and theoretical concepts of palliative care and LD practice which will inform the future activity of the working group. Conclusions: There are a number of barriers to EoLC for people with LDs. The PME offers a clearer understanding, from a local perspective, of what these are and provides a partnership approach to the challenges they bring and a process for service improvement.

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