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91 User Involvement in Palliative Care: Enabling Patients and Carers to Set the Agenda
  1. Dr Victoria Hewitt, Associate Specialist in Palliative Medicine,
  2. Joy Gibson, Day Care Manager and
  3. Chris Allison, Inpatient Manager
  1. St Benedict’s Hospice, Sunderland

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Introduction: Patients approaching end of life and their carers suffer distress from multiple, complex factors. Involving service users in service improvement is therefore imperative to meet their needs. This very vulnerability often prevents healthcare professionals from capturing the views of those most in need. Satisfaction surveys of our services are generally positive, but biased by low completion rates and poor local literacy levels. As …

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